Lessons learned IN HINDSIGHT from an upbringing in dysfunction and from caring for my mom. My intentions are to bridge my past with the present through my perspective in pictures, writing, etc. Sharing is therapeutic. In helping myself, I pray I help others.
This is mom today, Oct. 24, 2013. She is having one of her "in a far country" dementia episodes. She is extremely paranoid, delusional, disoriented, combative, and uncooperative. This is saddening because I have never seen mom in this way. Cuss words were used as if she was a master cussologist. She doesn't care about who she hurts or how she talks. I really hate seeing her this way.
In life, my mom was passive. Today she exhibited an unhealthy mix of verbal aggression and a rambunctious presentation style. This was not the day to wear your feelings on your sleeves, nor to take what she said personal. Everyone in her path was a target, and she was an out of control shooter!
The Nursing Home called today. Mom fell out of the bed last night and is complaining about
having severe back pains. The home ordered x-rays to be done to make sure she
doesn’t have complicated injuries. Unfortunately, mom was being very
uncooperative. She was kicking, cussing, and not wanting the x-rays. She was so
combative that I was asked to come in to talk with her. Although I was in
extreme pain from knee and hip problems, I agreed to help. MISTAKE! I brought more physical pain upon myself by going to the home.
Disoriented and struggling to
negotiate the turns and movements in her wheelchair, mom was almost at the front
entry door when I arrived. Since she couldn’t see me as I observed for a minute
and then greeted her. She was very hostile and upset with me. She believes I am
working in cahoots with the nursing home. She is extremely paranoid. She also
said she spoke to dad who would be picking her up. Can we say HALLUCENATIONS!
I believe she has entered another realm
in her illness. It broke my heart to see her this way. Her mind is rapidly deteriorating. Observations include:
Her using the “f” word towards me and the staff.
Her pushing a patient in a wheelchair out of her way.
Her aggressively approaching me with the wheelchair, not caring that she was running into me.
Her demanding that I leave because she doesn’t like me nor wants me around.
Her demanding that I take her outside so that she could leave.
Stains on her pants, perhaps food. This has happened before when she becomes elusive
The home was sending her to the
hospital for behavior evaluation. They wanted a family member to go with her,
however, I am in no condition to drive the 35 miles, sit several hours in the
ER and then suffer through admission. The home then decided to try to put her
into a hospital closer. The social worker will have to stay with her until she
is admitted. That’s what they get paid to do. She was just trying to get me to
do her job by sitting with my mom.
The Nursing Home Business office
called today. Thank God it wasn’t about mom’s conduct. I feel like the parent
who gets the daily call from their behavioral challenged kid’s school principal.
Mom is still not officially admitted
into the Nursing Home. Because she doesn’t have enough funds to pay for the
monthly room, I applied for Medicaid to supplement her income. The Obamacare was
probably easier to pass congress than mom’s application for Medicaid. They
require an excessive amount of certified documentation including house deed,
marriage license, insurance policies, bank statements, and so much more. I also
had to turn my mom’s Life insurance into an irrevocable burial policy because
she could not have assets. That means no inheritance for her family. SAD! Even
after all of the forms I have turned in, Medicaid wants more. This process is overwhelming,
frustrating, and draining. With all of this work she still could be denied. If
that happens, I don’t know what I’m going to do. I have no choice but to trust
God!
This was recorded after telling mom
that she has to stop hitting people. She was not receptive and resorted to this
“childlike” behavior. This type of behavior is common when she does not get her
way, and/or is mad with me. She becomes childish and uncooperative during these
moments. For me, it’s very frustrating because sometimes it is evident that she
is purposely acting out. Like a child, she uses these expressions for
manipulation. I usually end the visit because I don’t want her to believe she
is pulling my strings. Amazingly, when she sees I’m about to leave, she’ll
agree to stop acting out. MANIPULATION!
In the song “The Girl Is Mine” Michael
Jackson pen’s the infamous line “I’m a lover, not a fighter.” This is not my
mom’s testimony. Mom has been in the nursing home for 12 days, and today she
has been moved to her not 1st, not 2nd, but 3rd room. Why all the
moves? Mom is a fighter!
In the first room, she hit her
roommate. The rommie had a witness, therefore after filing an incident report,
mom was moved. During my visit 3 days ago, the nurse informed me that mom hit a
male resident as she entered the dining area. Yesterday, I got a call from the
social worker telling me that mom not only hit her rommie, but the roomie hit
her back with a vase leaving a bump on her head. The doctor looked mom over and she appears
okay. They will be running a few test to make sure she has no internal
injuries.
Today, mom was moved again. The staff
thought it was best to move her away from the rommie which she attacked. My mom
blames those she assault for attacking her first. I find this hard to believe
since she has hit me, and hit several nurses when she was hospitalized at
Baptist Geriatrics. I’m hoping that medicine adjustments will adjust “the fight”
in mom. If she hits another person, she will be moved to a psychiatric hospital
for evaluation. I have talked to her. She was not receptive and she was very
mean towards me. In an attempt to change her attitude, I told her that if she
continues hitting people I wouldn’t visit as much. She said she would stop hitting
people because she doesn’t want me to decrease my visits. We shall see!
My mom is stressing me out! Her violence
is of great concern. I’m afraid that she will harm someone and/or get hurt. I
am glad she is in a facility because I know we would not have been able to handle
“Gangsta mom.” LOL!
Mom was admitted to Southern Trace
exactly 1 week ago. Her roommate who had been hospitalized returned on Monday.
During my visit on Wednesday, the rommie said that she was afraid of mom. She
claims mom had clenched her fist in an attempt to hit her. She also said mom
cursed her out. The roomie informed me that she wanted mom moved out. Mom said
the roomie cussed her out. So who’s telling the truth? They both are. The
social worker stated there was a cussing match between the two of them. That
literally made me LOL!
Today, the social worker called to
tell me that they would be moving mom to another room. Supposedly the rommie and
one of her friends said that mom hit her in the head. Since mom can’t see, I
wonder how in the world did mom accomplish that feat! She does see shadows, so
it’s not impossible, however, I believe the roomie was determined to get mom
out.We’ll see how the new room goes.
Glad I hadn’t hung pictures on the wall.
I told my husband today, mom is in a
nursing home, yet she is still stressing me out! It’s hard to rest with the
frequent phone calls from the nursing home.
After 7 days in the home, and only 3
days with a roomie, mom is moved because she and the roomie could not get along!
Here are a few pics of the facility. I pray she doesn’t get evicted.
Mom was hospitalized from September 27 through October 9. It was a rough 14 days. Her behavior caused me to suspect dementia. Mom had EVERY symptom described in this Wikipedia article:
Dementia is not merely a problem of memory. It reduces the ability to learn, reason, retain or recall past experience and there is also loss of patterns of thoughts, feelings and activities. Additional mental and behavioral problems often affect people who have dementia, and may influence quality of life, caregivers, and the need for institutionalization. As dementia worsens individuals may neglect themselves and may become disinhibited and may become incontinent. (Gelder et al. 2005). Behaviour may be disorganized, restless or inappropriate. Some people become restless or wander about by day and sometimes at night. When people with dementia are put in circumstances beyond their abilities, there may be a sudden change to tears or anger (a "catastrophic reaction").[4] A common symptom of dementia for dementia sufferers to deny that relatives, even relatives in their immediate family, are their own relatives.
Thursday (1O/9/2013), I had the very
difficult task of not only telling mom she has been diagnosed with dementia,
but also that she would not be coming home to my house. The medical test
revealed she will be needing 24 hour care. Even though I was pretty sure she
had dementia, hearing the test results was a hard pill to swallow.
This is a conversation I had with mom
2 days ago. She was in a pretty good mood, even after telling her the news.
Even though she is delusional in this conversation, this is what she’s like on
a very good day.
Mom’s
in the hospital. She was admitted 8 days ago, on my husband’s birthday, Sept.
27th. The vents that led up to her hospitalization were horrific! I’ll
try to blog about it later.
Taking
care of mom is a lot of work. Cooking, cleaning, lifting, laundry, up at night
because she doesn't sleep, the mood swings. She’s
damaged my dining tabled, locked herself in the bathroom, fed “invisible people”
real food, hit me, cussed me out several times, kept my daughter and I up 3
nights in a row, and helped to reinjure my knee.
After 8 free days, you’d think I'd enjoy the
time off, however, I MISS MY MOMMA! This can only mean one thing-----my home IS her home!